Browsing School of Allied Health Sciences by Submission Date
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Ethnicity questions and antenatal screening for sickle cell/thalassaemia [EQUANS] in England: a randomized controlled trial of two questionnaires
(Article)Abstract Concepts allied to ethnicity are increasingly coming under question as legitimate variables for use in health research. A randomised controlled trial of two ethnicity screening questions for ascertaining risk of ... -
Working with sickle cell / thalassaemia support groups
(Book chapter)This chapter reports on the processes of research in working with support groups for sickle cell anaemia and beta-thalassaemia in conducting community-based surveys of knowledge of these two inherited conditions. The ... -
Ethnic question and antenatal screening for sickle cell / thalassaemia (EQUANS) in England
(Book chapter)None available. -
Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia
(Book chapter)From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ... -
Deconstructing genetic counselling: haemoglobinopathy counsellors in the United Kingdom.
(Book chapter)The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ... -
The new genetics and professional identities in international context
(Book chapter)This paper is concerned with the formation of and processes of changes in professional identities, especially those professional groups associated with the new genetics, be they learned scientific professions, clinicians ... -
Midwives' knowledge of haemoglobinopathies
(Article)This paper addresses the educational implications of a study of midwives and senior student midwives knowledge of haemoglobinopathies. Knowledge was assessed from 850 multiple choice questionnaires. Respondents who had ... -
Midwives' and senior student midwives' knowledge of haemoglobinopathies in England.
(Article)Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ... -
Knowledge of sickle cell in a screened population
(Article)The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing ... -
Genetic knowledge: the contribution of sociologies
(Book chapter)Different sociologies have a contribution to make in terms of identifying problems with untheorized notions of lay knowledge about genetics. This chapter reviews the insights afforded by different sociological traditions, ... -
Genetic screening and ethnic minorities.
(Article)No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ... -
'Race', ethnicity and haemoglobin disorders
(Article)The new genetics has brought forth concerns that such developments as screening for genetic diseases will accentuate the oppression of minority ethnic groups [Bradby (1996) Genetics and racism. In The Troubled Helix: ... -
The feasibility of using ethnicity as a primary tool for antenatal selective screening for sickle cell disorders: pointers from the research evidence
(Article)The Department of Health has announced a linked antenatal and neonatal screening programme for haemoglobinopathies by 2004 in a comprehensive national plan for the National Health Service in Britain. In response the National ... -
Sickle cell anaemia and deaths in custody in the UK and USA
(Article)An unexplained death in custody represents an important focal point for public scrutiny of the criminal justice system, especially when excess deaths occur in those of minority ethnic descent. Sickle cell anaemia is a ... -
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.
(Article)Objectives To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia. Design Observation ... -
Lessons for intermediate and low prevalence areas in England from the Ethnicity Questions and Antenatal Screening for sickle cell / thalassaemia [EQUANS] study
(Article)This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ... -
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Article)Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...