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dc.contributor.authorDyson, Sue, 1960-en
dc.contributor.authorAtkin, Karlen
dc.contributor.authorCulley, Lorraineen
dc.contributor.authorDemaine, J.en
dc.contributor.authorDyson, Simonen
dc.identifier.citationDyson, SE, Atkin, K, Culley, LA, Demaine, J and Dyson, SM (2012) School ethos and variation in health experience of young people with sickle cell disorder at school. Diversity and Equality in Health and Care 9 (1), pp.33-44.en
dc.description.abstractYoung people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated to improved experiences, and alternative explanations for variable health experiences at school are required. This paper draws on a multi-methods study of young people with sickle cell disorder in England in an attempt to make sense of variable experiences unrelated to disease severity or to teacher/peer awareness of sickle cell. School ethos, the manner in which school-based interactions combine to bring into effect school values, including attitudes expected of young people, attitudes expected of teachers, how young people relate to each other, how young people relate to staff, how the school relates to the community and a holistic concern with the spiritual, moral, cultural and social development of the young person. It is proposed that these interactions and resulting values are a key to understanding variable health experiences of young people with sickle cell disorder at school.en
dc.description.sponsorshipThis paper was funded by the Economic and Social Research Council (Grant RES-000-23-1486).en
dc.subjectsickle cellen
dc.subjectchronic illnessen
dc.subjectschool healthen
dc.subjectschool ethosen
dc.subjectorganizational cultureen
dc.subjectyoung peopleen
dc.titleSchool ethos and variation in health experience of young people with sickle cell disorder at schoolen
dc.researchgroupUnit for the Social Study of Thalassaemia and Sickle Cellen
dc.researchinstituteInstitute for Allied Health Sciences Researchen
dc.researchinstituteCentre for Reproduction Research (CRR)en

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