Now showing items 11-20 of 37
Midwives' knowledge of haemoglobinopathies.
(De Montfort University, 1995)
Working with sickle cell / thalassaemia support groups
(Jessica Kingsley, 2000)
This chapter reports on the processes of research in working with support groups for sickle cell anaemia and beta-thalassaemia in conducting community-based surveys of knowledge of these two inherited conditions. The ...
Deconstructing genetic counselling: haemoglobinopathy counsellors in the United Kingdom.
(International Institute for the Sociology of Law, 1998)
The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...
Genetic screening and ethnic minorities.
No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...
Ethnic question and antenatal screening for sickle cell / thalassaemia (EQUANS) in England
(Athens Institute for Education and Research, 2005)
Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia
From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ...
Midwives' and senior student midwives' knowledge of haemoglobinopathies in England.
Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ...
Clients-as-researchers: issues in haemoglobinopathy research.
(Whiting & Birch, 1995)
The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...
Haemoglobinopathies, antenatal screening and the midwife.
(Mark Allen, 1996)
Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...
Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life
(University of York, 2014)
Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...