First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS

De Montfort University Open Research Archive

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dc.contributor.author Dyson, Simon
dc.date.accessioned 2011-11-18T10:41:45Z
dc.date.available 2011-11-18T10:41:45Z
dc.date.issued 2011-12
dc.identifier.citation First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS American Journal of Preventive Medicine 41 (6S4): S413-S416. en
dc.identifier.issn 0749-3797
dc.identifier.uri http://hdl.handle.net/2086/5399
dc.description Report of the First WISSH (Worldwide Initiative for the Social Study of Haemoglobinopathies)Conference held at De Montfort University, UK in April 2010 en
dc.description.abstract A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy analysts, health economists, public health experts, as well as members of sickle cell nongovernmental organizations (NGOs). The purpose of the conference, held at De Montfort University in the United Kingdom (U.K.) in April 2010, was to apply quantitative and qualitative social research methods to understand the experiences of people living with sickle cell disease (SCD) or thalassemia, the contextual factors that can affect their individual well-being, and the health, educational, legal, and social policies that affect them. In particular, emphasis was placed on understanding the influences of “race” (as a social construct), class, and poverty on outcomes among people with sickle cell disease or thalassemia. en
dc.description.sponsorship Simon M. Dyson acknowledges the UK’s Economic and Social Science Research Council Grant Number RES-000-23-1486.The conference organizers acknowledge the receipt of an unrestricted educational grant from Novartis Oncology that enabled UK NGOs to attend the conference. Publication of this article was supported by the Centers for Disease Control and Prevention through a Cooperative Agreement with the Association for Prevention Teaching and Research award # 09-NCBDDD-01. en
dc.language.iso en en
dc.subject sickle cell en
dc.subject thalassaemia en
dc.subject haemoglobinopathies en
dc.subject social science en
dc.subject international conference en
dc.subject De Montfort University en
dc.subject WISSH en
dc.title First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS en
dc.type Article en
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell en
dc.researchgroup Mary Seacole Research Centre
dc.peerreviewed Yes en


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