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    First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS

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    Date
    2011-12
    Author
    Dyson, Simon
    Metadata
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    Abstract
    A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy analysts, health economists, public health experts, as well as members of sickle cell nongovernmental organizations (NGOs). The purpose of the conference, held at De Montfort University in the United Kingdom (U.K.) in April 2010, was to apply quantitative and qualitative social research methods to understand the experiences of people living with sickle cell disease (SCD) or thalassemia, the contextual factors that can affect their individual well-being, and the health, educational, legal, and social policies that affect them. In particular, emphasis was placed on understanding the influences of “race” (as a social construct), class, and poverty on outcomes among people with sickle cell disease or thalassemia.
    Description
    Report of the First WISSH (Worldwide Initiative for the Social Study of Haemoglobinopathies)Conference held at De Montfort University, UK in April 2010
    Citation : First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS American Journal of Preventive Medicine 41 (6S4): S413-S416.
    URI
    http://hdl.handle.net/2086/5399
    DOI
    https://doi.org/10.1016/j.amepre.2011.09.009
    ISSN : 0749-3797
    Research Group : Unit for the Social Study of Thalassaemia and Sickle Cell
    Research Institute : Institute for Allied Health Sciences Research
    Peer Reviewed : Yes
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    • School of Allied Health Sciences [1415]

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