“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.

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dc.contributor.author Dennis-Antwi, Jemima
dc.contributor.author Culley, Lorraine
dc.contributor.author Hiles, David
dc.contributor.author Dyson, Simon
dc.date.accessioned 2011-08-23T09:26:39Z
dc.date.available 2011-08-23T09:26:39Z
dc.date.issued 2011-08
dc.identifier.citation Dennis-Antwi, J.A., Culley, L., Hiles, D. and Dyson, S.M. (2011) “I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition. Ethnicity and Health, 16 (4-5) pp. 465-481. en
dc.identifier.issn 1355-7858
dc.identifier.uri http://hdl.handle.net/2086/5174
dc.description Open Access Article can be found by following the DOI en
dc.description.abstract Objective. To describe the lay meanings of sickle cell disease (SCD) in the Ashanti region of Ghana. Design. Depth interviews with 31 fathers of people with SCD; a focus group with health professionals associated with the newborn sickle cell screening programme, and a focus group with mothers of children with SCD. Results. Whilst there are discourses that associate sickle cell with early or recurrent death, with supernatural undermining of family well-being, and with economic challenges in purchasing medical care, other discourses that value children and other family practices that resist stigma are also in evidence. Conclusion. Lay perspectives on SCD are constructed in the contexts of enduring culture (the high value placed on children); changing culture (medicine and research as available alternative discourses to supernatural ones); altered material circumstances (newborn screening producing cohorts of children with SCD); changing political situations (insurance-based treatment); enhanced family resources (the experience of a cohort of young people with SCD). Above all the praxis of successfully caring for a child with SCD, and the political experience of sharing that praxis, stands in opposition to discourses of death and helps parents resist stigma and despair. en
dc.language.iso en en
dc.publisher Taylor and Francis en
dc.subject sickle cell en
dc.subject lay perspectives en
dc.subject sociology of health en
dc.subject Ghana en
dc.subject Ashanti en
dc.subject Africa en
dc.title “I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition. en
dc.type Article en
dc.identifier.doi http://dx.doi.org/10.1080/13557858.2010.531249
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell en
dc.researchgroup Psychology
dc.researchgroup Reproduction Research Group
dc.researchgroup Mary Seacole Research Centre
dc.peerreviewed Yes en


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