Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school.

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dc.contributor.author Dyson, Simon
dc.contributor.author Atkin, Karl
dc.contributor.author Culley, Lorraine
dc.contributor.author Dyson, Sue, 1960-
dc.contributor.author Evans, Hala
dc.date.accessioned 2011-03-08T10:23:34Z
dc.date.available 2011-03-08T10:23:34Z
dc.date.issued 2011-03-04
dc.identifier.citation Dyson, S.M., Atkin, K., Culley, L.A., Dyson, S.E. and Evans, H. (2011) Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school. Sociology of Health and Illness 33 (3) pp. 465-483 en
dc.identifier.issn 0141-9889
dc.identifier.uri http://hdl.handle.net/2086/4706
dc.description This article is Open Access, and is available at: http://onlinelibrary.wiley.com/doi/10.1111/j.1467-9566.2010.01301.x/abstract en
dc.description.abstract The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual demands for active and passive pupil behaviour. The tactics or dispositions that young people living with sickle cell can then employ, during strategy and struggle at school, are therefore fragile: they work only contingently, transiently or have the unintended consequences of displacing other valued social relations. The dispositions of the young people with sickle cell are framed by other social struggles: innovations in school procedures merely address aspects of sickle cell in isolation and are not consolidated into comprehensive policies; mothers inform, liaise, negotiate and advocate in support of a child with sickle cell but with limited success. Reactions of teachers and peers to sickle cell have the enduring potential to drain the somatic, cultural and social capital of young people living with sickle cell. en
dc.description.sponsorship Economic and Social Research Council (Grant: RES-000-23-1486) en
dc.language.iso en en
dc.publisher Wiley-Blackwell en
dc.subject sickle cell en
dc.subject school health en
dc.subject Pierre Bourdieu en
dc.subject field en
dc.subject capital en
dc.subject habitus en
dc.subject chronic illness en
dc.subject sociology en
dc.title Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school. en
dc.type Article en
dc.identifier.doi http://dx.doi.org/10.1111/j.1467-9566.2010.01301.x
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell
dc.researchgroup Reproduction Research Group
dc.researchgroup Mary Seacole Research Centre
dc.researchgroup Nursing and Midwifery Research Centre
dc.researchgroup Health Policy Research Unit
dc.peerreviewed Yes en
dc.ref2014.selected 1366719837_9110680002072_22_1


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