Haemoglobinopathies, antenatal screening and the midwife.
Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of knowledge of the range of ethnic groups affected by haemoglobinopathies threatens the quality of service provided. Where one parent is a carrier, inaccurate knowledge of inheritance patterns means missed opportunities for health education. Inaccurate knowledge of inheritance patterns where both parents are carriers may lead to a child born with a major haemoglobinopathy and, potentially, to litigation. Purchasers should ensure that adequate resources are made available for in-service training on the haemoglobinopathies.
Citation : Dyson, SM. Fielder, A. and Kirkham, M. (1996) Haemoglobinopathies, antenatal screening and the midwife. British Journal of Midwifery, 4 (6) pp.319-322.
ISSN : 0969-4900
Research Group : Unit for the Social Study of Thalassaemia and Sickle Cell
Research Institute : Institute for Allied Health Sciences Research
Peer Reviewed : Yes