The educational experiences of young people with sickle cell disorder: a commentary on the existing literature

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dc.contributor.author Dyson, Simon
dc.contributor.author Atkin, Karl
dc.contributor.author Culley, Lorraine
dc.contributor.author Dyson, Sue, 1960-
dc.date.accessioned 2008-08-01T12:07:06Z
dc.date.available 2008-08-01T12:07:06Z
dc.date.issued 2007
dc.identifier.citation Dyson, S. et al. (2007) The educational experiences of young people with sickle cell disorder: a commentary on the existing literature. Disability and society, 22 (6), pp. 581-594. en
dc.identifier.issn 0968-7599
dc.identifier.uri http://hdl.handle.net/2086/135
dc.description.abstract Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place of the school as a venue for health screening with respect to vision, hearing and dental care is also complicated by SCD. The lack of a formal school policy to address the combined episodic and longer term school absences correlated with SCD clearly disadvantages a group of pupils whose academic potential may already have been curtailed by teacher expectations based on their ethnicity. Both the physical and social milieu of the school could be adapted so that the environmental triggers of severe painful episodes associated with SCD are greatly reduced. Systems of pastoral care and health education elements of the school curriculum need to be attuned to the challenges and opportunities for learning that SCD raises. SCD may be considered as a resource for education across a range of national curriculum subjects, could bring an anti-racist dimension to subjects such as maths, biology, history and geography, and could challenge a number of prevailing disabling and racist discourses in wider society. In short, sickle cell could be one bridge to more inclusive education for pupils of marginalized ethnic groups. en
dc.description.sponsorship Economic and Social Research Council Grant RES-000-23-1486 en
dc.language.iso en en
dc.publisher Taylor and Francis en
dc.subject sickle cell en
dc.subject education en
dc.subject disability discrimination en
dc.subject racism en
dc.subject chronic illness en
dc.subject ethnic minority en
dc.subject school en
dc.subject pupil en
dc.title The educational experiences of young people with sickle cell disorder: a commentary on the existing literature en
dc.type Article en
dc.identifier.doi http://dx.doi.org/10.1080/09687590701560196
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell
dc.researchgroup Reproduction Research Group
dc.researchgroup Mary Seacole Research Centre
dc.researchgroup Nursing and Midwifery Research Centre
dc.researchgroup Health Policy Research Unit


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