Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.

De Montfort University Open Research Archive

Show simple item record

dc.contributor.author Dyson, Simon
dc.contributor.author Cochran, Fiona
dc.contributor.author Culley, Lorraine
dc.contributor.author Dyson, Sue, 1960-
dc.contributor.author Kennefick, Ann
dc.contributor.author Kirkham, Mavis
dc.contributor.author Morris, Patsy
dc.contributor.author Sutton, Faye
dc.contributor.author Squire, Patricia
dc.date.accessioned 2008-08-01T11:12:46Z
dc.date.available 2008-08-01T11:12:46Z
dc.date.issued 2007
dc.identifier.citation Dyson, S. et al. (2007) Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study. Critical public health, 17 (1), pp. 31-43. en
dc.identifier.issn 0958-1596
dc.identifier.uri http://hdl.handle.net/2086/133
dc.description.abstract Objectives To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia. Design Observation of 121 first antenatal interviews between midwife and mother in four contrasting areas of sickle cell prevalence in England. Taped interviews with 111 mothers and 115 taped interviews with 61 different midwives. Fieldwork data from 76 preparatory workshops and liaison meetings. Results 'Ethnicity' and 'family' are terms liable to variable interpretation. Both midwives and mothers implied belief in distinct 'racial' groups, disrupting scientifically accurate understandings of the relation between risk of sickle cell/thalassaemia and ethnic/family origins. Bookings were characterised by time pressures and a lack of explanation of sickle cell/thalassaemia. The mother was not permitted to self-assign ethnicity in 13 of 115 observed encounters. Conclusions Antenatal screening for sickle cell/thalassaemia based on an ethnicity screening question is weakened by a range of factors. Some midwives use intuition to select/exclude clients from the screening questions rather than implement formal policy. The screening term 'ethnic/family origins' is vulnerable to varied interpretations by clients. The persistence of erroneous beliefs in 'racial' groups displaces correct understandings of the relation between ethnicity and risk of carrying genes associated with sickle cell/thalassaemia. Midwives require support in both in ethnicity awareness and knowledge of sickle cell and thalassaemia, and more time at antenatal bookings to administer the ethnicity screening question. A challenge to the continued prevalence of scientific racism in popular discourse is required. en
dc.description.sponsorship The NHS Sickle Cell and Thalassaemia Screening Programme, Department of Health and the Unit for the Social Study of Thalassaemia and Sickle Cell en
dc.language.iso en en
dc.publisher Routledge en
dc.subject ethnicity en
dc.subject identity en
dc.subject genetic en
dc.subject race en
dc.subject racism en
dc.subject screening en
dc.subject sickle cell en
dc.subject thalassaemia en
dc.subject midwives en
dc.subject England en
dc.subject RAE 2008 en
dc.subject UoA 11 Nursing and Midwifery
dc.title Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study. en
dc.type Article en
dc.identifier.doi http://dx.doi.org/10.1080/09581590601045188
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell
dc.researchgroup Reproduction Research Group
dc.researchgroup Mary Seacole Research Centre
dc.researchgroup Nursing and Midwifery Research Centre
dc.researchgroup Health Policy Research Unit


Files in this item

This item appears in the following Collection(s)

Show simple item record