'Race', ethnicity and haemoglobin disorders
Date
1998
Authors
Dyson, Simon
Journal Title
Journal ISSN
ISSN
0277-9536
Volume Title
Publisher
Elsevier
Peer reviewed
Abstract
The new genetics has brought forth concerns that such developments as screening for genetic
diseases will accentuate the oppression of minority ethnic groups [Bradby (1996) Genetics and racism.
In The Troubled Helix: social and psychological aspects of the new human genetics, ed. T. Marteau and
M. Richards, pp. 295±316. Cambridge University Press, Cambridge]. Haemoglobin disorders primarily
a€ect minority ethnic groups in the U.K. but have been the subject of protest regarding lack of services
as much as the unwelcome advent of them. This paper examines various conceptions of "race", from
biological reductionism, through notions of ethnicity, racialized groups, sociological conceptions of
"race", political and analytical uses of the term "Black" and so-called "new ethnicities" such as situa-
tional and plastic ethnicity in order to examine the consequences of these competing conceptions of
race for a social analysis of sickle cell anaemia and beta-thalassaemia. The paper concludes that any
group of people associated with the haemoglobin disorders are subject both to constraints upon their
actions and opportunities for re-interpreting their social world. In conclusion it is proposed that no
nomenclature classifies the phenomenon unproblematically. The notion of race as a political construct
[Goldberg (1993) Racist Culture: Philosophy and the Politics of Meaning. Blackwell, Oxford] is used to
suggest that attempts to construct all-embracing definitions themselves signal the potential abuses
which may be attendant upon programmatic or mechanistic conceptions of the relationship between
race and haemoglobin disorders.
Description
Keywords
race, genetics, racism, sickle cell, haemoglobin disorders, thalassaemia, political blackness, ethnicity, RAE 2001
Citation
Dyson, S. (1998) 'Race', ethnicity and haemoglobin disorders. Social science and medicine, 47 (1), pp. 121-131.
Research Institute
Institute for Allied Health Sciences Research