Genetic screening and ethnic minorities.

De Montfort University Open Research Archive

Show simple item record Dyson, Simon 2008-08-01T10:18:34Z 2008-08-01T10:18:34Z 1999
dc.identifier.citation Dyson, S. (1999) Genetic screening and ethnic minorities. Critical social policy, 19 (2), pp. 195-215. en
dc.identifier.issn 0261-0183
dc.description.abstract No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to professional education. Practitioners should link explanations of the haemoglobin disorders to explorations with the client of their perception of their ethnic identity. This should address the dangers of not informing clients of the tests; of not explaining to clients the nature and inheritance of haemoglobin disorders; and of not testing those who wish not to be tested. It should enable a record of ethnicity to be made which is tailored to the specific health purpose for which the information is sought. en
dc.language.iso en en
dc.publisher Sage en
dc.subject ethnicity en
dc.subject screening en
dc.subject sickle cell en
dc.subject genetics en
dc.subject thalassaemia en
dc.subject census categories en
dc.subject ante-natal en
dc.subject haemoglobinopathies en
dc.subject disability en
dc.subject RAE 2001 en
dc.title Genetic screening and ethnic minorities. en
dc.type Article en
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell

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