Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia

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dc.contributor.author Dyson, Simon
dc.date.accessioned 2008-07-31T12:23:06Z
dc.date.available 2008-07-31T12:23:06Z
dc.date.issued 2007
dc.identifier.citation Dyson, S. (2007) Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia. In: M. Kirkham, ed. Exploring the dirty side of women's health. London: Routledge. pp. 270-283. en
dc.identifier.isbn 0415383250
dc.identifier.uri http://hdl.handle.net/2086/122
dc.description.abstract From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt to target screening by only offering screening to those children from ethnic groups deemed to be at higher risk of sickle cell/thalassaemia). At the time of writing the policy decision for antenatal screening has not been finalised, but will entail universal screening in some areas of England. This paper reports on 16 depth interviews conducted with 27 specialist haemoglobinopathy counsellors on their experiences of the ethnicity screening question and sickle cell/thalassaemia risk. They report dealing with a significant number of cases where the client has self-identified as 'White English' and does not know of any other relevant ancestry that might place them at risk of sickle cell/thalassaemia. They are not therefore carriers of Medi terranean, North African, Arab, or Iranian descent, nor are they of so-called mixed heritage, all of whom might self describe as 'white'. White English carriers are reported to react badly to the news they carry sickle cell or beta-thalassaemia trait. They are reported to 'freak out' and say they are 'tainted', 'unclean' and 'contaminated' by a disorder they associate strongly with being 'black'. The counsellors, themselves largely of African/Caribbean descent, are obliged to absorb the racism implicit in these reactions, but develop some interesting strategies for 'cooling out' such White English carriers. en
dc.description.sponsorship NHS Sickle Cell and Thalassaemia Screening Programme and the Unit for the Social Study of Thalassaemia and Sickle Cell. en
dc.language.iso en en
dc.publisher Routledge en
dc.subject sickle cell en
dc.subject thalassaemia en
dc.subject genetic screening en
dc.subject racism en
dc.subject race-thinking en
dc.subject white English identity en
dc.subject black history en
dc.subject.ddc 362.198
dc.title Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia en
dc.type Book chapter en
dc.researchgroup Unit for the Social Study of Thalassaemia and Sickle Cell
dc.researchgroup Mary Seacole Research Centre


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